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Author: Ann Bergin

Things I have spilled, tripped into, and fallen off, a list

Age 5. The actual brick wall of my school, while playing the game “witchy witchy”. I receive a head injury but the school’s first aider, my Dad, judges his child to essentially be fine following this lunchtime incident as there is not much bleeding. A family trip to the hospital ensues that evening upon my Mum’s instistence. The doctors roll me up in a blanket and pour hydrogen peroxide into the wound on my forehead to bubble out all of the little bits of brick that got stuck in there.

Age 11. The just-out-of the microwave tinned tomato soup, which hit the dining room’s cream painted woodchip wallpaper leaving a very slight stain for years to come despite my Mum’s best efforts.

Age 12. The stage at my junior woodwind band’s Christmas concert. Teachers concernedly rush to ask if my clarinet is ok. Both me and it are ok, and people are very kind to me after the concert.

Age 15+. Tea and coffee, on carpets and floors everywhere. (Beige is the only acceptable flooring colour.)

Age 18+. Pints of beer, and wonky pub tables upon which those pints of beer precariously rest within my prescence.

Age 19. My bike, three times within the first term I start riding it around Oxford. I start to always wear gloves when riding.

Age 26. The badly chosen walk down the surprisingly steep actual ski slope overlooking Lake Bohinj while holidaying in Slovenia. My friend notes on this hellish trip that I routinely trip over my own feet on flat pavements. I concur.

Age 30. The barbell set-up for deadlifting, and pretty much everything else at shin height in the gym. Shin bruises just become a thing, despite my best efforts at good technique.

Age 31. The (glass!) light fittings that dangle from the ceiling in the hallway and bathroom of my boyfriend’s flat.

Also age 31. My boyfriend :'( It’s ok. We talk about this a lot and have strategies for how to deal with road crossing, spiky bushes over hanging the pavement, and bodies of water close to where we’re walking. (I walk on the side of the water.)

Age 33. Tea and coffee on the carpet and floor of my boyfriend’s flat.

A personal journey towards Cynefin

January 2020, our new Agile Coach arrives and says the words “enabling constraints”. I write them down in my notebook, and type them into Google that evening.

And so I find Liz Keogh’s tweet:

Examples of enabling constraints: Haiku’s small format. Apollo 13 and “Failure is not an option”. A metronome. A safety harness. Blinkers on a race horse. Choice of tech stack. Ubiquitous domain language. A Code of Conduct. Scrum’s timeboxed sprints. Twitter’s character limit.

Liz Keogh, @lunivore

From which I find her blog, and read Cynefin for everyone and Cynefin for developers. In February I faciliate a version of her Avoiding Disorder exercise for the team I work with. It helps.

Not long after, I find Dave Snowden’s comments on Liz Keogh’s blog … and then I forget exactly how but I start watching conference keynotes on Youtube. Anyhow, it is thusly that I come to know of the work of Dave Snowden and of Cognitive Edge, and therefore of Cynefin.

Things I have been thinking about for a long time start making sense.

[There would follow here a long story about not recognising chaos and as a result being in Australia and not the UK as WHO declared the global pandemic due to COVID-19, but now is not the time.]

And then in May, I type Cynefin into Meetup.com and find the merry band of agilists known as Agile Reading, whose meetups I very much enjoy attending and to whom I have now promised a talk in January 2021 entitled Untranslatables – a journey in three words to reflect on culture*.

Said talk will focus on three words that are often said to be untranslatable into English:

Sisu – Finnish, “grit, stoicism”

Lagrom – Swedish, “just enough”

Cynefin – Welsh, “habitat, belonging”

And so begins a short series on this blog that will form the basis of my talk.

Ann 🦉

* Or some re-arrangement thereof, I’m still working on the title: tweet me if you have a better suggestion.

On completing the week ending Sunday 20 September 2020

Greetings all.

Early in the week I was very buzzy having attended Software Acumen‘s virtual conference Lean Agile Exchange. Overall I really enjoyed the event, which brought together some of their in-person conferences (notably Agile Cambridge, Lean Agile Scotland, and Agile Manchester) in a way that felt nicely cross-pollinatory community-wise. Chatting in the conference Slack got me on to the work of Sal Freudenberg on the psychology of programming, which I’m looking forward to exploring much much more.

Since Thursday evening, I was rather distracted with responding to Sirin Kale’s Guardian long read on dyslexia. I wrote over 1000 words on the matter, but if you want a short version of the adult dyslexic response here’s one from Kate Lister on Twitter. The future’s neurodiverse, and I hope the Guardian can catch-up.

On this note, Gareth Ford Williams wrote a great Medium piece on ADHD & Dyslexic Perspective on Cognitive Accessibility using Cognitive UX Design Principles. I am here as a dyslexic person for what he describes as a “personal trundle through what the inside of my brain is like, using random stuff I found on the internet and unrelated anecdotes”. There are also about a million useful a11y links off it, and so I have it Bookmarked.

Earlier in the week, I listened to Move Beyond Words‘ podcast with Sean Douglas on discrimination and dyslexia. I’m not sure how Douglas’ own Codpast managed to pass me by; perhaps it was living under rock with insufficient social media accounts. Anyhow, I now have two excellent dyslexia podcasts to listen to.

Finally, Adriene (of Yoga With fame) asked me what I was building this week in her weekly Love Letter, and I was all like “this website!”.

Ann 🦉

Upon having my identity as a dyslexic “debated” in the Grauniad

My name’s Ann, and I’m a 33 year old dyslexic woman. Because of COVID-19, I’ve decided to be a 33 year old dyslexic woman on the Internet writing things much more often. This past week the Guardian published a long read article by writer Sirin Kale called “The battle over dyslexia“, and I have some things to say about it as it pertains to me, an adult dyslexic person.

To summarise, the general gist of Kale’s article is that there’s a scientific battle raging as to whether dyslexia is even a thing. Her argument hinges on disagreements between notable academic educational psychologists, specifically on their having differing views on how to solve the complex problem of how local authorities provide support for children struggling to read within the social and political context of the UK. I’m not a parent and I’m not involved in the world of SEND, so this blog isn’t about addressing the specifics of this argument. However, before I write more, I want to sincerely extend my compassion to the parents of all children struggling to read and access education, dyslexic or not. Our education system shouldn’t be failing anyone, but fighting about dyslexia isn’t how we solve this problem and Nancy Doyle has already responded about this on LinkedIn.

What I do want to address in this blog is the whole “dyslexia, is it even a thing?” being published in a publication of the standing of the Guardian, and having the argument underpinning this assertion be based solely on how dyslexia manifests in childhood. Questioning whether dyslexia is really a thing at all is a major take-home of Kale’s article, and I think this is clear from many of the responses on social media. As such, I think Kale’s writing is actively harmful to dyslexic people of all ages and all backgrounds because in questioning dyslexia she is taking from us the ability to describe ourselves to other people and be understood. She is, in particular, taking from adult dyslexics the ability to be understood as a dyslexic adult. This is an injustice to us as knowers of our own lived dyslexic experience.

To the best of my knowledge, the only actual dyslexic Kale spoke to in the year she took to carefully research and write her article was Lord Addington who is quoted as saying:

“If you’re telling me that dyslexia doesn’t really exist, I’m afraid my everyday experience of life says you’re wrong.”

Lord Addington, quoted in Kale’s article

I’ve never met Lord Addington, and given that I’m not a hereditary peer I have a pretty different background and life experiences, but I for sure feel him on the lived experience of being dyslexic.

Being dyslexic isn’t all of me, but it is in every part of me and it affects all of my lived experiences. It is literally all about the way I am able to think. It is intimately connected with my relationship with my family because it’s exceedingly likely that I inherited it. It has had a role in absolutely everything I’ve ever done, from my childhood right up to being 33 years old today.

And so you might see why I don’t appreciate having my identity “debated” in a national newspaper. Quite aside from badly misrepresenting current science, it’s just not cool to write an article for a whole year about dyslexia and largely fail to talk to adult dyslexic people about their lived experiences of being dyslexic. Lord Addington is only really quoted in his professional capacity as a politician and advocate, and his lived experiences aren’t explored; as far as I’m able to tell, everyone else quoted is a professional working in education or a parent of a dyslexic child. Kale needed to hear the voices of many more actually dyslexic adults to learn about the dyslexic experience, which extends far beyond that of learning to read.

Almost every adult dyslexic to whom I’ve spoken openly about the marginalizing effects of dyslexia has a story about the time they failed in school and a story about the time they failed in a job. These stories are, for better or worse, part of the culture of being an adult dyslexic. My own stories of failing in education and in paid work are, frankly, not low stakes tales; and this is despite my very significant race, class, and educational privilege. Like Kale, I’m a graduate of the University of Oxford, and I’m lucky to have many positive stories about achieving educational and career success, but not every dyslexic has these. My own difficulties did not stop when I learned to read, they happen every day and especially every time I learn something new. They’re happening as I write this and organise my thoughts. I sure hope that the next person at my work I need to explain my dyslexic struggles to hasn’t read Kale’s article, because if they have I think they’re much less likely to be sympathetic to me.

Kale’s article misses all the truly good and joyful parts of the dyslexic experience too. The other part of dyslexic culture is in fact just culture in general and especially visual culture and technology, because without dyslexic thinking connecting the seemingly unconnected there isn’t progress. We might not be the super greatest at the reading or the short term remembering but we’re here for a very good evolutionary reason. On the scale of human history reading happened incredibly recently, and differently thinking neurodiverse brains are a human survival tactic. I could reel off a great long list of famously successful dyslexics here, but perhaps a more grounded testament to this is that Kale’s article ended-up on the front page of Hackernews (a notable or notorious depending on who you ask tech news aggregator) and has 74 comments at the time of writing. This is a pretty high level of engagement, and speaks to so many folks working in tech and start-ups because they’re dyslexic. We have a pretty unenviable collection of wicked problems to solve in the next ten years or so if Earth is to remain habitable, and we need everyone to be able to contribute to solving these problems. We won’t solve them without the contributions of dyslexic people.

So, to conclude. The year is 2020. Writing about a group of marginalized people without having really spoken to or listened to those people shows you’re not reading the room, and your writing is likely to do real harm to those people. The science of dyslexia is not in the state it was 44 years ago in 1976. Dyslexic people are real, dyslexic children become dyslexic adults, and our lived experiences as adults go far beyond our experiences of learning to read. Our stories deserve to be heard and understood.

Ann 🦉

This blog is dedicated to anyone who has ever had their identity questioned or erased by writers in the Guardian, I hear you and I see you 💖.

Featured image of a squid swimming slowly via the Creative Commons.

My new home on the Internet

Greetings from a warm autumn evening in Cambridge.

I think I’ve had “make new website, but properly” on my to-do list ever since I abandoned the my previous WordPress site some time back in 2014.

What has finally made me do it? Very deep frustration with myself; this, I find is the dyslexic way and this blog is a much needed creative avenue. And then, in early September, Dave Snowden upon blogging once more quoted Harold Jarche on writing in your own voice, and in turn Harold Jarche quoted Ton Zylstra, who said:

Your blog is your avatar, a full representation of yourself, made manifest online in HTML texts.

Ton Zylstra

So it’s blogs all the way down, and here’s mine.

Ann 🦉

Hello world!

Hi everyone!

After a long period of yak shaving, umm-ing and ah-ing … I finally have a new home on the Internet! And I think it’s a keeper this time.

Stay tuned for agile software development, dyslexic connections, forays into anthrocomplexity and much much more!

I won’t be defining the how or the why of the chaos owl, but I think you’re gonna get the idea …

Ann 🦉